NHS Blackburn with Darwen CCG

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Current Engagement

When this engagement started

From September 2018 onwards

Who we’ve engaged with so far

Nelson – 72 people

Accrington – 57 people

Darwen – 94 people

Burnley – 61 people

Blackburn – 101 people

Why we are engaging on this

A partnership from Blackburn with Darwen Council Public Health, Together a Healthier Future, and the CCGs (Blackburn with Darwen and East Lancashire) engaged with people to show them a film about Adverse Childhood Experiences (ACEs) and then lead a discussion on how we can better support and manage ACEs in the community and services.

How we have engaged so far

We invited people to attend film showings on Adverse Childhood Experiences via Eventbrite invitations online, which were promoted on social media and in traditional media, as well as through community networks.

The film was followed by a question and answer session with an expert panel, which focused on how, as a community, we can work together to address the issues of childhood trauma.

Findings so far

Communities and services are becoming more aware of ACEs through the events, and this has led to more training. This work is ongoing.

How patient and public involvement is making a difference

Over the series of films we have begun to see greater awareness of ACEs and the beginning of a social movement to promote and support ACE awareness. Services have received training in ACE awareness including our local East Lancashire Child and Adolescent Services (ELCAS).


When this engagement started

June / July 2017 and July / August 2018.

Remains live.

Who we are engaging with

Service users over 50 and GP referrers.

Why we are engaging on this

To understand the experiences and views of NHS hearing aid service users to help us improve the service through an improved service specification and procurement.

How you can get involved

People using NHS hearing aids, over the age of 50 or relatives or carers can complete the questionnaire online at: www.surveymonkey.co.uk/r/NHS_hearing_aids or they can contact 01282 644 627 to obtain help to complete the survey.

Lancashire CCG Hearing Loss Service Engagement Summary Report 2017 – 2019


When this engagement started

Ongoing engagement.

Who we are engaging with

Cancer service users via the Cancer Alliance Patient Experience and Engagement Oversight Group.

Why we are engaging on this

To understand patient experiences of cancer services.

How we are engaging

A work plan is in place, and this will focus on understanding people’s experiences of cancer services using a range of mixed methods, including surveys, interviews and where appropriate patient stories and focus groups.

Findings so far

The Oversight Group has identified the five top areas that are important to them. This has shaped the agenda for further work to elicit the views of people who use cancer services.


When this engagement started

Ongoing engagement.

Who we are engaging with

PPG members and patient representatives.

Why we are engaging on this

We are developing a cancer awareness campaign called “Let’s Talk Cancer” and we involved patients and patient reps to test the materials and help us shape the campaign.

How we are engaging

We have engaged with patients and patient representatives within the pennine cancer alliance, and also within the Patient Participation Groups (PPGs) in Pennine Lancashire.  Patients have contributed to the design and development of the “Let’s Talk about Cancer” campaign and materials – this is currently being further developed based on this feedback.

Findings so far

A report will be published in due course, alongside the campaign which is due to launch from March 2019 onwards.


When this engagement started

January 2019

Who we are engaging with

Older residents aged 65 and over.

Why we are engaging on this

To elicit service user feedback on the concepts of the campaign including images and wording.  The campaign has been developed across Pennine Lancashire  to signpost patients to the relevant service in their area if they have (a) fallen (b) are at risk of falling or © afraid of falling.

How we have engaged so far

We took the design concepts of the campaign to three groups: Hyndburn Over 50s Forum, Blackburn with Darwen Older People’s Group and East Lancashire Patient Partners Board to test the messages.

Findings so far

Participants at the groups told us that the messages were confusing, they didn’t like some of the words used and they didn’t like the images particularly.

How patient and public involvement is making a difference

Based on the feedback we received, the posters were amended to reflect their comments. The campaign is due to launch Spring 2019.



When this engagement started

From October 2018 — throughout 2019. Ongoing.

Who we are engaging with

Maternity ward patients.

Why we are engaging on this

To elicit service user feedback on their experience of maternity care, and to compare the provision with their expectations for good quality care, which is respectful, evidence-based, kind and safe, delivered in welcoming and clean environments.

How we have engaged so far

The members of the Maternity Voices Partnership adopted the 15 Steps methodology to investigate service user views of maternity services. 15 Steps for Maternity is a structured toolkit developed to elicit service user feedback on their experience of maternity care, and to compare the provision with their expectations for good quality care, which is respectful, evidence-based, kind and safe, delivered in welcoming and clean environments. The toolkit was used by the Chair and on one occasion also by the Co-Chair of the Maternity Voices Partnership (MVP), to gain understanding and knowledge for future reviews that will include additional Service Users, and to expedite the process to support an ongoing Maternity Review.

Findings so far

An initial report is being presented to the Maternity Voices Partnership in February 2019 and we will post the findings here as soon as we can.

How patient and public involvement is making a difference

The senior midwifery staff accompanying the visits were very receptive to the questions and observations raised both during the time in the settings and in response to the written reports that followed. The overwhelming impression was positive and it was clear that staff were already aware of some areas which could be improved, however the ‘fresh eyes’ of the reviewers did identify some opportunities to further enhance the patient experience and improve access to excellent care. These were taken on board by the senior team, prioritised and an action plan developed, some items on which were delivered very quickly, demonstrating their commitment to the process.

The intention is for a rolling programme of visits to be undertaken by new Service Users, particularly those from a hard to reach background, to broaden the perspectives gained and as a means to further engage with local families.


When this engagement started

January 2019

Who we’ve engaged with so far

Burnley PPG representatives in the Burnley PPG network agreed to conduct a PPG awareness campaign. The PPGs and network wish to involve more young people. Members agreed to work with the engagement team to do this.

Why we are engaging on this

The PPGs and network wish to involve more people, including young people.

How we have engaged so far

This is a form of co-production as well as “art engagement”.  A young people’s art and design group was briefed and advised us how to run the campaign, including designs for a poster and online campaign.

Findings so far

The designs are in development and we are awaiting these — we will share as soon as they are complete!

How patient and public involvement is making a difference

Young people are helping the CCG and the PPG shape an awareness campaign — in essence the campaign is being coproduced with young people.