As part of the Lancashire and South Cumbria Stroke Services review, a stroke patient information working group is being set up.
The overall aim of the stroke patient information group will be to make recommendations for how there can be consistent, high quality and appropriate information for stroke patients and their families/carers along the stroke patient care pathway – from the initial prevention of strokes, through to hospital treatment, rehabilitation, survivorship and preventing further strokes from happening.
This follows on from a stroke patient information workshop which was held in January. The workshop generated a number of findings to improve patient information that the work group will explore further in order to make the recommendations.
The first meeting of the stroke patient information work group will take place on Thursday 26th May, 10am – 12pm in Leyland (for further details, please see below).
The information area that will be focused on for this meeting will be awareness raising and will cover the following findings from the workshop:
- The symptoms of stroke/transient ischaemic attack (TIA) that awareness raising campaigns should cover
- More targeted engagement activities for harder to reach groups
- Awareness should be targeted at younger people too and health messages could be started in schools.
Subsequent meetings will take place every six weeks or so (the exact dates and the locations for where the meetings take place can be confirmed with the group) and will focus on different areas of stroke patient information, for example:
Thursday 7th July Appropriate information during hospital phase and into survivorship
- People need to understand what is happening to them during the hospital phase but the way in which this information is delivered would depend on how the individual had been affected by the stroke and how much they were capable of understanding
- Information is needed to help people to adapt to change and access appropriate support and advice
- Patients and their family/carers have a “named contact”
Thursday 18th August Secondary prevention
- There is a gap in the information available about the possibility of having a further stroke and how to reduce the occurrence of this
Thursday 29th Sept Hospital information (and other items ongoing from above)
- Written information is needed around specialist support services and interventions
- Documentation (discharge and referral) could be improved in terms of it being consistent, easy to complete and have a meaningful purpose.
Anyone who would like to take part and confirm a place at a meeting, and/or has any further questions can call Sharon Walkden on 01772 214103 or e-mail on firstname.lastname@example.org