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Pennine Lancashire End of Life Care Strategy

A Pennine Lancashire End of Life Care strategy has been designed to deliver a vision of high qual­ity ser­vices devel­oped around the needs of indi­vid­u­als and their fam­i­lies requir­ing End of Life Care, includ­ing sup­port for their phys­i­cal, psy­choso­cial, emo­tional and spir­i­tual needs.

This follows the introduction of a Department of Health (DH) strategy in July 2008 – aimed at pro­mot­ing high qual­ity care for all adults at the end of life. The strat­egy rep­re­sents an impor­tant mile­stone for health and social care. It is the first com­pre­hen­sive frame­work aimed at pro­mot­ing high qual­ity care across the coun­try for all adults approach­ing the end of life. It also out­lines a struc­ture on which health and social care ser­vices can develop effec­tive, high qual­ity ser­vices.

In support of these principles, the Pen­nine Lan­cashire strat­egy has been devel­oped in part­ner­ship, and after con­sul­ta­tion, with a wide range of stake­hold­ers includ­ing NHS East Lan­cashire Clin­i­cal Com­mis­sion­ing Group (EL CCG), NHS Black­burn with Dar­wen Clin­i­cal Com­mis­sion­ing Group (BwD CCG), East Lan­cashire Hos­pi­tals NHS Trust (ELHT), Lan­cashire CareNHS Foun­da­tion Trust (LCFT), Lan­cashire County Coun­cil (LCC), local hos­pices and third sec­tor organ­i­sa­tions. The col­lec­tive phi­los­o­phy of the strat­egy is one of equity of access and equal­ity of care for all res­i­dents of Pen­nine Lan­cashire. The Pen­nine Lan­cashire foot­print com­prises the bor­oughs of Black­burn with Dar­wen, Hyn­d­burn, Burn­ley, Rib­ble Val­ley, Pen­dle. and Rossendale.

End of Life ser­vices will be deliv­ered by a range of providers work­ing col­lab­o­ra­tively to pro­vide ser­vices based on the patient’s needs and pref­er­ences, to achieve a death that is in the place cho­sen by the patient. NHS East Lan­cashire CCG and NHS Black­burn with Dar­wen CCG already com­mis­sion dif­fer­ent aspects of pal­lia­tive health care for a grow­ing num­ber of its res­i­dents through exist­ing con­tracts. Lan­cashire County Coun­cil also com­mis­sions a num­ber of ser­vices that sup­port the deliv­ery of inte­grated pal­lia­tive and End of Life Care.  Ser­vices will need to be com­mis­sioned across a num­ber of dif­fer­ent set­tings; patients own home, care homes, sheltered/extra care hous­ing, hos­pices or hos­pi­tals. On some occa­sions they will also be needed in other loca­tions such as hos­tels for the home­less and inde­pen­dent liv­ing homes for peo­ple with learn­ing dis­abil­i­ties and men­tal  health problems

For the pur­pose of this strat­egy End of Life Care involves:
• Adults with any advanced, pro­gres­sive, incur­able ill­ness (e.g. advanced can­cer, heart fail­ure, chronic obstruc­tive pul­monary dis­ease, cere­brovas­cu­lar dis­ease,
chronic neu­ro­log­i­cal con­di­tions, demen­tia); advanc­ing age and frailty.
• Care given in all set­tings (e.g. home, acute hos­pi­tal, residential/care home,
nurs­ing home, hos­pice, com­mu­nity hos­pi­tal and oth­ers).
• Care given in the last 12 months of life.
• Patients, car­ers and fam­ily mem­bers (includ­ing care given after bereave­ment).
• The pop­u­la­tion of Pen­nine Lancashire.

Pennine Lancashire End of Life Care Strategy 2015 - 2018 (pdf | 3.7 MiB)

Advance Care Planning 

Advance Care Plan­ning can help you plan for the future. It gives you an oppor­tu­nity to think about, talk about and write down your pref­er­ences and pri­or­i­ties for your future care, includ­ing how you want to receive your care.  The choice is yours as to who you share the infor­ma­tion with. By record­ing your pref­er­ences in this book­let it will help to ensure that your wishes are taken into account.

Advance Care Plan­ning can help you and your car­ers (fam­ily and friends who are involved in your care) to under­stand what is impor­tant to you. The plan pro­vides an ideal oppor­tu­nity to dis­cuss and record in writ­ing your views with those who are close to you. It will help you to be clear about the deci­sions you make and it will allow you to record your wishes in writ­ing so that they can be car­ried out at the appro­pri­ate time.

Remem­ber that your feel­ings and pri­or­i­ties may change over time. You have choices in what may hap­pen in the future such as being able to remain liv­ing inde­pen­dently at home. This doc­u­ment allows you to voice your own pre­ferred choices.  You can change what you have writ­ten when­ever you wish to, and it would be advis­able to review your plan reg­u­larly (every 3–6 months) to make sure that it still reflects what you want. Remem­ber to sign and date this doc­u­ment when you review it so that it is clear to others.

Please note that this book­let and Sec­tions are not designed to be com­pleted all at once. It can be filled in over a period of time, as and when you feel com­fort­able to do so, but a good place to start is Sec­tion One “State­ment of your wishes and care preferences.”

Advance Planning Guide Briefing Paper (pdf | 646.4 KiB)

Advanced Care Planning Guide FORM (pdf | 6.2 MiB)

Preferred Place For Care Easy Read (pdf | 1.4 MiB)

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AEB_1631_East-Lanc_End-of-Life-Table_2016_05_18_V10 (2)

For health and social care professionals we have also established a training directory which you can download here: Training Directory.  This will be updated regularly, and ultimately we hope to have a searchable database of courses for health professionals, so watch this space!